Foundations & Partners
14 rare-disease foundations, academic centers, and pipeline pharma partners in one visible roster.
Rare-disease foundations (14)
ARIA surfaces gene-specific views for each of the following foundations in Foundation Hub:
- STXBP1 Foundation
- SNAP25 Foundation
- MECP2
- SCN2A
- SCN1A
- SYNGAP1
- GRIN2B
- CHD2
- TCF4
- SHANK3
- ARID1B
- DYRK1A
- ADNP
- PEX10 (Peroxisomal Disorders)
Academic partners
CHOP, Weill Cornell, Baylor College of Medicine (BCM), Stanford, Colorado, Texas Children's, and others referenced in the Questionnaire Wizard's enrollment maps.
Pipeline partners
Pipeline Ready · Awaiting Partnership Agreements is an honesty rail, not a marketing flourish. A partner is not marked Active on the Foundation Hub Research Data Sharing tab until an agreement is in place. Your data is not shared with any partner without your explicit consent.
Thirteen pipeline pharma and academic partners are visible in the Research Data Sharing tab. What a partner receives is documented per partnership — data shape, GA4GH compatibility, consent model.
Industry and equipment partners
SDL integrates with equipment vendors including ChemSpeed and Opentrons, plus additional partners as hardware integrations expand.
For partners considering ARIA
The partnership list is visible, honest, and actively evolving. To explore a partnership, contact the ARIA team through the support channel listed on the Support page.
Why this page exists
Partnership status is a trust matter. Listing partners and their real status — including the ones not yet active — is how ARIA earns the trust the research data layer requires.